What happens when you have a tube fed 4 year old daughter (who is like a 2 yr. old in every way), who has a severe sleep disturbance?
Answer: You get the surprise of your life at 2:30 a.m. when she decides to open the feed bag and dump it ALL OVER the floor the wall, herself and her bed! Yeah...Mr. Man and I were up in the middle of the night, cleaning and scrubbing, scrubbing and cleaning. NOT COOL!
BUT...she's precious, we love her, and she knows it! :0)