Hello everyone! I just wanted to tell you about an upcoming doctor's appointment for Ladybug (our 4 year old daughter) and also some news about Wiggle Bug (one of our 4 year old sons) from an appointment he had today. They both need your prayers!
Ladybug will be seeing a rheumatologist this Friday, to address issues of chronic pain in her limbs, and other issues that have plagued her life. We are praying SO hard, that this appointment will lead to some answers and some help for her! While we are always grateful for test results, etc. which tell us what the problem ISN'T, we are particularly praying for answers that will lead us to understand what IS happening to her. She has been poked so many times. She has had at least 4 or 5 sleep studies. She is fed through a G-tube and doesn't eat much by mouth at all. She has had so many tests and doctor's visits and hospital stays...we have honestly lost count. Many have asked why we don't just stop all the testing. We actually had decided to stop testing her for a little while, but it is truly heart breaking to watch her struggle with all of these issues she has. As parents, we can't just stand by and do nothing. We want to get to the heart of the issues, so that we can help her have the best quality of life, possible. And we also know that faith without works is dead. We are trying to do our part, so that we can ask in faith, for Heavenly Father to pour out His measure of blessings upon her. Please add your faith to ours, for our sweet Ladybug!
Wiggle Bug had an earlier than usual appointment with his orthopedist today, because he has been having pain in his hips, hamstrings, knees and heel cords, etc. As many of you know, he (along with Ladybug and Snug-a-Bug) has Cerebral Palsy. I didn't expect to hear the answer to doctor gave today, for his pain. He said that his heel cords, and hamstrings are tighter, by far, than they were 9 mos. ago when he last saw him. The range of motion in his ankles is completely gone. He said that it is likely that Wiggle Bug will need a surgery to lengthen his heel cords and possibly one of his hamstrings, or at the least, he will need Botox injections to help with the tightness. We would ask for your faith and prayers for this sweet, little man! He has also dealt with many physical challenges in his young life, and we pray that the prescribed stretching that is to be done in physical therapy, will help the tightness and range of motion in his limbs, to improve and give him some relief from the pain, so that surgery won't be necessary. His little body amazes me! From birth, he has been such a fighter...having had heart surgery, cranial surgery and other surgeries, and being G-tube fed, etc. His birth mother was told he wouldn't live to be a year old. He is certainly meant to be here, that's for sure!
Thank you for your love and prayers for our family, and in particular, for our 2 sweethearts! Your love and support are a strength to us!