Thursday, July 1, 2010

The Journey of a Ladybug!

Yesterday Ladybug and I hung out at Phoenix Children's Hospital again! Don't was a scheduled visit, but I have whispered in her ear before that we've gotta' quit meeting like this! :) I've lost count at how many times she's been there and been put to sleep for various different procedures. She was in for an EMG and a Nerve Conduction Study to find out why she's having pain in her arms, legs, feet and hands. She is constantly grabbing her arms, legs and hands and saying "Owie!" Sometimes it involves tears and kicking (most often at night), and we have yet to know if she's feeling actual pain, or if it's a weird sensation, or what. Anyway, the neurologist was able to see me again before we left, to tell me that the testing came back normal. This means that Ladybug isn't having any peripheral neuropathy. Translation: It means she doesn't have any muscles or nerves that are misfiring. While we are so grateful for no peripheral neuropathy (I've heard it never goes away), we are disappointed that this didn't answer what's going on with her. In my own mind, I refer to Ladybug's journey through life, as a series of events where we find out yet another thing that isn't the problem. So, on we go! She now has an appointment with a rheumetologist and a chiropractor. The meds she takes at night, to help her sleep, aren't working as well as they used to. She is still having lots of "bad nights". Anything is better than the 5 hour "parties" she used to have in the middle of the night, but we have learned that if she doesn't have her meds for even just one night, she will have an all night party again! Prayers would be awesome! Bless her little heart, she can't talk to us and tell us what's going on, so we continue on our quest to find out what the real issues are for her! If she could talk, I am very sure she would thank you all for your faith and prayers in her behalf! She is SO deserving of them! :D)


  1. Count us in!! We continue to stand with you for wisdom, peace, and miraculous healing!!

  2. Thank you kindly, Nanette! :)